Category: Support Multiplied Blog (Page 3 of 3)

Please Consider participating in this Global Initiative!

Please take a moment to read this information and participate in this Global Initiative!

In this world-first initiative, we are giving twins and multiples the opportunity to steer future twin and multiple-birth health research in the direction that matters to you.Help us to identify the top research priorities for twins and their families to enjoy optimal health and well being.

We are launching the Global Twins and Multiples Priority Setting Partnership with TAMBA UK, and St George’s University of London.  This initiative seeks to identify the top 5-10 priorities for research into twins’ and multiples’ health. Ultimately,our aims are to save lives and to improve long-term health outcomes for multiples.  

We believe there is insufficient attention given to the specific health needs of multiple-birth families even though the number of multiple births has increased overtime. 

It is important that decisions about future research priorities don’t rest with researchers or government funding bodies alone. Our partnership wishes to hear the voices of all stakeholders in multiple-birth care – twins, higher-order multiples, their parents and families, GPs, obstetricians, pediatricians, midwives, maternal health nurses and educators.  

Ensure your voice is heard by filling out an initial 15-minute online survey. You’ll be asked to nominate up to three important unanswered research questions on the health of multiples relating to issues such as pregnancy, birth, parenting, childhood development, diseases, emotional and mental well being etc.

You can complete the survey or find out more information by clicking on this linkThe survey closes soon so please take it ASAP!

We would also appreciate if you could share this survey with others in your circle e.g.  twin friends and families, multiple-birth clubs, your GP and specialists. It is open to everyone who supports twin lives and well being.

Let’s work together to identify the most pressing issues needing research, and to make sure research funding and resources are going where they are most needed. Generations of multiple-birth families – now and in the future – are counting on us.

Many thanks,

Monica Rankin

ICOMBO Chair

Twin to twin transfusion syndrome

Twin to twin transfusion syndrome (TTTS) is a rare condition that occurs during a twin pregnancy when blood moves from one twin (the “donor twin”) to the other (the “recipient twin”) while in the womb. TTTS is a complication that specifically occurs in identical (monozygotic) twin pregnancies that share the same “egg” sac (monochorionic) that may or may not share the same amniotic sac (monoamniotic). TTTS usually develops between 15 and 26 weeks of pregnancy. The donor twin may be born smaller, with paleness, anemia, and dehydration. The recipient twin may be born larger, with redness, too much blood, and increased blood pressure, resulting in an increased risk for heart failure. Treatment may require repeated amniocentesis during pregnancy. Fetal laser surgery may be done to interrupt the flow of blood from one twin to the other. After birth, treatment depends on the infant’s specific symptoms. The donor twin may need a blood transfusion to treat anemia. The recipient twin may need to have the volume of body fluid reduced. This may involve an exchange transfusion. Medications may be given to treat heart failure in the recipient twin, per the U.S. Department of Health and Human Services/National Institutes of Health

Approximately 15% of Identical Twin pregnancies develop TTTS.

Sources: 

Happy Thanksgiving

Multiples of America wishes you all a Happy Thanksgiving and we are thankful for the opportunity to provide support to all multiple birth families. #supportmultiplied

World Prematurity Day

November 17 is World Prematurity Day. Multiples of America honors all multiple birth families who have experienced premature birth. Per the CDC, 63% of multiple births are preterm. Learn more at www.multiplesofamerica.org #WorldPrematurityDay #wpd2018 #supportmultiplied.

Blog Message From The President, Kim England

 

Greetings from your Board of Directors and Executive Office of Multiples of America. With the holidays fast approaching, I wanted to reach out to all of you and wish everyone a very Happy Thanksgiving. This time of year can become very hectic and our to do lists seem to get longer and longer. Just remember to stop and enjoy because everything works out at the end. A typical Thanksgiving meal takes the night before and 1/2 of Thanksgiving Day to prepare but only 15 minutes to consume, at least the first round!

There is a quote I would like to share about this special holiday:

“Gratitude unlocks the fullness of life. It turns into what we have enough, and more. It turns denial into acceptance, chaos into order, confusion into clarity. It can turn a meal into a feast, a house into a home, a stranger into a friend. Gratitude makes sense of our past, brings peace for today and creates a vision for tomorrow”.

                                                                                                                                                         -Melody Beattie

Happy Thanksgiving!

Kim England

President

Multiples of Ameirca

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