ICOMBO is conducting a survey about School Placement of Multiples. The survey is available in English, French and Spanish. This is being done in response to our members all over the world saying that they often aren’t being consulted when school placement for their multiple birth children is decided. The survey will be open until March 31st 2019.The results will be presented at the next ISTS Congress in Hong Kong in November 2019. The results will also be made available to multiple birth groups all over the world. The hope is that this information will help foster change in school policies about placement of multiples in school.English version – https://www.surveymonkey.com/r/PZWTD6HSpanish version – https://www.surveymonkey.com/r/6KST6WLFrench version – https://www.surveymonkey.com/r/6DD6LKP Right now the United States is second in the line of participants of this survey! Let’s see if we can knock out the first place for the USA!
Category: Support Multiplied Blog Page 2 of 3
CONGRESS UPDATE 225 February 2019The 2019 Congress is being held at the Chinese University of Hong Kong.Registration will cost €100 for ICOMBO Level One members, and €180 for Level Two members.Accommodation options are not yet available.ICOMBO WORKSHOP – 28th NovemberWe are interested to hear from ICOMBO members regarding suggested topics for discussion at theworkshop, and perhaps a topic for future research.
I am particularly interested in hearing from aboutParental Leave situations in different countries – are multiple birth families receiving better benefits thanfamilies with single births? Is there something ICOMBO could do? Is this something of value to you andyour organisation, or do you have a more important topic to discuss? Please contact me firstname.lastname@example.org and let me know what you think.Registration for Congress is now open –
If you wish to submit an abstract to the Congress, for a poster or a presentation during one of thesessions, here is the link
At the moment, there is nothing on the Congress website about accommodation for Congress. I havecontacted the organisers to get further information. I will pass it on when I hear something.I have heard from a few of our members who have confirmed that they will be attending, and will also bestaying in Hong Kong for a few days after Congress for some sightseeing.
My husband John will betravelling with me, and we also plan to stay until about 3rd or 4th December. Perhaps we will do somesightseeing together ??? I expect that we will be staying at a hotel near the congress venue while thecongress is on, and I will probably transfer to another hotel closer to the tourist areas of Hong Kong forthe last few days.
I will forward more details to any people who are interested, just let me know.
A Message from the Executive Vice President
Did you know that April is Multiple Birth Awareness Month? How will your club celebrate? Last month, our Executive Office emailed Multiple Birth Awareness Kit to our clubs. It is full of great ideas to share the unique experience of being a multiple birth family. We would love for all our clubs to participate in Multiple Birth Awareness Month. Please share your ideas and photos with us!
Also, as part of Multiple Birth Awareness Month, we are looking for family photos to be part of our ad campaign that will be posted on our social media platforms throughout the month. Please share your high quality photos (at least 1MB in size). We would like to feature a full spectrum of multiple birth families, all photos are welcome. Please submit the photos to ExecutiveVP@multiplesofamerica.org. We will send you a Photo Submission Form.
We will be posting updates regarding Multiple Birth Awareness Month, so please check our website and Facebook. Photo submissions are due by March 15, 2019
Maybe you’ve been there. You needed a fertility doctor and googled the closest one to you and, viola, found yourself sitting across from someone who was just NOT your type. Worse yet, you were paying $300 an hour to talk to Dr. Unempathetic and Distracted and you felt totally misunderstood and wondering if the clinic thought you were just another cookie cutter patient.
Hey, we’ve been there too.
My wife, Deb, and I made every mistake in the book when it came to finding the right doctor for us. In fact, we not only picked the wrong doctor once, but twice, and the second time, our new doctor made an error that sent my wife to the ER, saving her life just in the nick of time. I couldn’t believe I had to remind him that his job was to help us grow our family, not shrink it.
Deb and I, like many of you, entrusted our fertility doctors with our dreams, our hopes, our prayers, and oh yeah, our savings. Yet we knew nothing about them when we walked in the door and the end results were heartbreaking and expensive.
In 2015, we finally decided enough was enough and from our kitchen table in San Francisco, we started to build FertilityIQ. FertilityIQ gives fertility patients the platform to thoroughly and anonymously review their Reproductive Endocrinologist and the entire treatment team, sharing the details about what they loved (or didn’t) as they work(ed) through the goal to grow their family.
In return, hopeful parents read these reviews to help them make a more informed decision before making one of the most expensive and emotionally taxing decisions of their lives.
Today, we have helped over 1 million people in the U.S. and Deb and I are doing everything we can to earn the trust of those depending on us. We refuse to take any advertising dollars, or be lured by the partnerships of clinics, because we don’t want people to question the content objectivity. Yes, it’s that important to us.
We ask reviewers to provide us with a document, if they can, to show that they were indeed patients at the clinic they are reviewing so readers can trust the assessment and feedback.
The fertility community? Well, we have never quite seen a community as educated, knowledgeable, empathetic, motivated, and passionate about helping their own like fertility patients. FertilityIQ is an easy way to give back to the community and share your honest thoughts as you would with a friend over a cup of coffee. Too few of us know we can turn for unbiased insight and the consequences for being uneducated can have a devastating impact.
Going to the wrong doctors for three years didn’t only create heartache and sap the excitement out of marriage, but it cost us an expensive $75,000. The tragic news is we are the norm, not the exception. The average fertility patient will give up on their doctor and be forced to move on to a second, sometimes even a third doctor or clinic. Even worse, the average cost a couple will spend before finding success is $66,000. Yep, that’s more than the average household income for a year. It’s just not right.
So why is it so hard to find the right fertility doctor? For one, there are limited resources, online and off. Second, the decision is highly personal. You may want a warm and fuzzy doctor while your friend wants someone who is factual and to the point. Next, we know time is not on our side, so we have to make snap judgements and split decisions. You need to get in ASAP, your OBGYN gave you a number to the local clinic and you took the doctor who had the next opening. Will it be a good fit for you and your partner? Who knows, but you have an appointment next month.
The point is we settle, despite all that hangs on the line. We did it time and time again and learned the lesson the hard way.
Deb and I built FertilityIQ to reverse this and to give people a voice. We quit our jobs, decided to harness our compassion, and pool our wisdom so that we can effectively be smarter together as a community. Our goal is to help others have healthy and happy families and reach parenthood with our relationships, emotions, and bank accounts still in one piece.
Our goal is not only to gather reviews from fertility patients, but to provide others with as much easy-to-read and simple facts and data, so they can make the best decisions for them and their family. We have an array of courses to give you the insight & tools to make wise choices at every step and sift through mountains of data to give you actionable insight.
The road towards parenthood is lonely and isolating, but it doesn’t have to be intimidating. With the right information at your fingertips, we hope you can make your dreams come true.
Your experience matters! If you have an insight on a fertility doctor or clinic, we’d love to hear from you (Namelessly of course!). You can click here at any time to start an assessment and if you don’t have the chance to finish it right now, we will email you a continuation link so you can pick up where you left off another day.
Please take a moment to read this information and participate in this Global Initiative!
In this world-first initiative, we are giving twins and multiples the opportunity to steer future twin and multiple-birth health research in the direction that matters to you.Help us to identify the top research priorities for twins and their families to enjoy optimal health and well being.
We are launching the Global Twins and Multiples Priority Setting Partnership with TAMBA UK, and St George’s University of London. This initiative seeks to identify the top 5-10 priorities for research into twins’ and multiples’ health. Ultimately,our aims are to save lives and to improve long-term health outcomes for multiples.
We believe there is insufficient attention given to the specific health needs of multiple-birth families even though the number of multiple births has increased overtime.
It is important that decisions about future research priorities don’t rest with researchers or government funding bodies alone. Our partnership wishes to hear the voices of all stakeholders in multiple-birth care – twins, higher-order multiples, their parents and families, GPs, obstetricians, pediatricians, midwives, maternal health nurses and educators.
Ensure your voice is heard by filling out an initial 15-minute online survey. You’ll be asked to nominate up to three important unanswered research questions on the health of multiples relating to issues such as pregnancy, birth, parenting, childhood development, diseases, emotional and mental well being etc.
We would also appreciate if you could share this survey with others in your circle e.g. twin friends and families, multiple-birth clubs, your GP and specialists. It is open to everyone who supports twin lives and well being.
Let’s work together to identify the most pressing issues needing research, and to make sure research funding and resources are going where they are most needed. Generations of multiple-birth families – now and in the future – are counting on us.