Author: Executive Office (Page 1 of 5)

Partnerships

National Multiple Births Awareness Day – May 28, 2016
Building Support for the Road Ahead
FOR IMMEDIATE RELEASE MAY 2, 2016
May 28 is National Multiple Births Awareness Day and on this day, each year, Multiple Births Canada and its
affiliate chapters across Canada raise awareness about the realities of raising twins, triplets or more (multiple
births). On May 28, 1934, the world famous Dionne Quintuplets were born in Corbeil, Ontario. They were the
first known surviving Canadian quintuplets. For this reason, May 28 was selected as Canada’s National Multiple
Births Awareness Day.
This year Canada has seen two unique and rare sets of identical/monozygotic multiples in the news. Multiple
Births Canada is always here to provide information and insight into situations like these for both the families
and the media.
Having multiple births children is an exciting experience, but at the same time can come with unique challenges
and sometimes healthcare concerns, and for that reason there is a need for ongoing support from peers, family,
healthcare professionals, educators and the greater community.
National Multiple Births Awareness Day’s selected theme for 2016 is: “Building support for the road ahead”.
MBC strives to increase membership across Canada, welcome new affiliate chapters to our family, manage a
sustainable financial position, and increase knowledge and support for our internal support network of multiple
births families.
Multiple Births Canada realizes that while the general population may have a basic idea about what it might be
like to have twins or more – cute, fun, “double the trouble” – they do not always have a real picture of what it
is like to raise multiples until they themselves experience a multiple births pregnancy.
There are a number of risks to babies and even mothers when experiencing a multiple births pregnancy. There
is also potential long term healthcare, parenting or educational needs families with multiples may need to
navigate.
Facts
 Approximately 1 in 86 births is a twin birth and approximately 1 in 6,400 is a triplet birth.
 Of all twin’s births, approximately 56% result in preterm birth – arriving before 37 week’s gestation
 Couples experiencing a multiple birth are at greater risk for stress, isolation, financial difficulties, marital
stress and depression
Needless to say, families of multiple births benefit from having access to formal and informal supports through
Multiple Births Canada and its affiliate chapters, which strive to offer accurate information, outreach services,
peer support, workshops, and organized group programming. Families with multiple births children may
experience a range of unique experiences throughout childhood and into adulthood, and Multiple Births
Canada aims to build support for the road ahead.
There is no exact same experience of a multiple births pregnancy. Where one family may experience no
complications during the prenatal period, another will follow a different path and be monitored more closely
due to increased risk of complications. Another family may go on to experience a full term birth, while the next
goes through a preterm birth. Whatever fork in the road a family comes to, we are here to advise and support
families for the road ahead.
Like a family, Multiple Births Canada can only thrive with the support of the people within it and around it.
Multiple Births Canada reaches out to families and offers knowledge and advice from others who have already
travelled this road.
MEDIA CONTACT
Theresa Sanders, Office Manager
Multiple Births Canada – office@multiplebirthscanada.org
1-866-228-8824

Texas Children’s Hospital   http://www.texaschildrens.org/
Fetal Health Foundation    http://www.fetalhealthfoundation.org/
Twins Magazine            http://www.twinsmagazine.com/

 

“Welcome to the latest edition of the ICOMBO newsletter. By the time you receive this newsletter, I will be on my way to Budapest for our Congress and meetings. I am really looking forward to catching up with some of you there – renewing friendships and making new friends.

I have been busy planning our meetings and I think it will be a great program. I am hoping that we can work together to create an exciting year ahead for ICOMBO members.”

Read the rest of the International Council of Multiple Birth Organizations (ICOMBO) newsletter at the following link:

ICOMBO NewsletterMay2016

Safety with Special Needs Children

By Carly Mannava
Special Needs Coordinator
specialneeds@nomotc.org

Safety is one of the most important issues with raising multiples, but it becomes paramount if one of your children has special needs. Children who suffer from an array of disabilities, whether it is mentally, physically or emotionally, will suffer accidents at a higher rate. Your child’s disability will determine what types of issues to be aware of.

For example, if your child suffers from ADHD/ADD (Attention Deficit Hyperactivity Disorder/Attention Deficit Disorder) which is clinically defined as a neurological behavioral development disorder, here are some helpful tips to prevent accidents:
Beware of your surrounding environment: Young children should not be left alone in bath tubs and pools. Make sure your window screens are secure.
Make clear and concise rules: Post these rules throughout your house as a reminder. Make sure you share these rules with other people residing in your home.
Make visual cues: Poison or danger stickers are perfect reminders for kids. This is extremely important for those who suffer from ADHD who may have a tendency to be developmentally immature and may suffer from a poor memory.
Creative play: Role play and role reversal can give them an opportunity to address dangerous situations before they occur.
Arrange for supervision: Never pair ADHD kids with other ADHD kids. Inform the babysitter or caretaker of your child’s disabilities.

Safety around the house also presents challenges. If your child’s vision is impaired, there are several ways to help them move around their home safely.
Make and place large print and/or Braille signs throughout the house.
Placing magnifying glasses around the house will allow your child to feel more independent
Personal Reader is an expensive but viable solution. It is a computer-like monitor that magnifies the computer screen.
Talking aids is another way to create more freedom for your child

Children suffering from hearing loss or impaired hearing should have safety aids installed in their house.
Amplify by boosting the signal on the TV or telephone.
Electronic signaling through lamps is expensive but worthwhile.

Sometimes our special needs children may not handle certain situations appropriately in an emergency, such as a fire. There should be a house map with the exits marked. Children should know the Evacuation Plan and practice a fire alarm drill to make them become more comfortable in the event of a real fire.
Fire extinguishers should be placed on every level of the house.
Flashing or vibrating smoke alarms will help your child be aware of a fire.
Contact the closest fire house for your neighborhood to notify them in advance that you have a special needs child and what their disability is. The information provided will help the firemen in an event of an emergency.

Lastly, toys could also be hazardous if they are not used the way they were designed to be used. Find toys that are developmentally appropriate, sturdy and interesting. For example:
Visually impaired children’s toys should have different shape and textures, realistic sounds and large parts.
Hearing impaired children’s toys should have bold colors and amplified volumes with different sounds and vibrations.
Physically impaired children’s toys should be easy to maneuver, sturdy with large handles, and easy to operate.

For information on toy recalls, contact CPSC (The US Consumer Product Safety Commission) Their web address is www.cpsc.gov

In spite of your child’s special need, safety always comes first!

¡Es un Pequeño Mundo – Y la Red lo Hace Más Pequeño! It’s a Small World – And the Net has made it even Smaller!

By Karleen Harp
SpanishLiaison@nomotc.org

El Internet se ha encogido nuestro mundo. Es más fácil que nunca comunicar con alguien a través del mundo – y también para encontrar información acerca de casi cualquier tema, en cualquier idioma. Lo mismo es verdad para la información acerca de ser padres de los niños múltiples. Encontré varios sitios del idioma español que ofrecen información a los padres de múltiples.

El American Academy of Family Physicians tiene un sitio con mucha información en Español, incluyendo artículos de la salud de bebes y mujeres. Visita a http://familydoctor.org/online/famdoces/home/children/parents/infants/170.html para leer un artículo titulado “Gemelos: Proporcionándole Cuidado A Dos.”

KidsHealth.org ofrece un buen artículo de “Como prepararse para un parto múltiple” que está disponible en http://kidshealth.org/parent/en_espanol/embarazo/multiple_births_esp.html
Partosmultiples.net es un portal de habla hispana muy bueno, con mucha información, foros, consultas, biblioteca y un listado de asociaciones españolas de partos múltiples. Un sitio ideal para contactar con otras familias en la misma situación.

Trillizos.net es una web creada por padres de trillizos, donde cuentan su camino hacia la paternidad y su experiencia como padres, en la que muchos padres se verán identificados. Además, brindan datos sobre trámites y ayudas por partos múltiples.
También en casi todas las web sobre bebés y maternidad como bebesymas.com se puede encontrar información acerca del embarazo, parto y cuidado de gemelos.
Para padres de gemelos o mellizos, http://www.guiainfantil.com/salud/embarazo/multiple/experienciaspadres.htm es un espacio para compartir sus experiencias con otros padres de múltiples.

PadresMúltiples.com.ar es un grupo de apoyo para padres de más de un bebe a la vez en Argentina, pero también ofrecen un grupo Yahoo en español para padres de múltiples en cualquier parte del mundo.

Multifamilias.com.ar es organización Argentina de soporte a familias con mellizos, trillizos y más que organiza charlas para padres y brinda buena información sobre lactancia, psicología, y escolaridad.

En México, Gemelos.org.mx es la Asociación Nacional de Nacimientos Múltiples.

It’s a Small World – And the Net has made it even Smaller!

The Internet has shrunk our world. It is easier than ever to reach out to someone across the world – and to find information about almost any topic, in any language. The same holds true for information about parenting multiples. I found several Spanish language websites that offer information to parents of multiples.

The American one, Academy of Family Physicians, has a website with a lot of information in Spanish, including articles about women and infants’ health. Visit familydoctor.org/online/famdoces/home/children/parents/infants/170.html to read an article titled: Twins: Providing Care to Two.

KidsHealth has a great article on preparing for multiple births which is available in Spanish at kidshealth.org/parent/en_espanol/embarazo/multiple_births_esp.html
Partosmultiples.net is a very good Spanish language website, with a lot of information, forums, advice, library and a listing of Spanish associations of multiple births.
Trillizos.net is a website created by parents of triplets, where they share their experiences, which many parents of multiples will be able to identify with. They also offer information on procedures and aids for multiple births.

Bebesymas.com offers information, articles, and message boards in Spanish about pregnancy, labor and care of twins as well as other general parenting topics.
For parents of twins, www.guiainfantil.com/salud/embarazo/multiple/experienciaspadres.htm is a space to share its experiences with other parents of multiples.

PadresMúltiples.com.ar is a support group for parents of more than one baby at a time in Argentina, but they also offer a Spanish Yahoo group for parents of multiples anywhere in the world.

Multifamilias is an organization in Argentina that supports families with twins, triplets and more. They organize chats for parents and offer good information on lactation, psychology, education, and other parenting issues.

In Mexico, Gemelos.org.mx is the National Association of Multiple Births in Mexico.

Just A Click Away…

By Judi Cimildoro
National/State Liaison
StateLiaison@nomotc.org

Let’s go back a bit in time for my beginning. Do you remember when your parents (most likely Dad more than Mom) asked “Where did the clicker for the TV go?” Today if my parents were to ask me that same question, I would stand in front of them, for I am a clicker. I click in the morning, at work, after dinner and after the kids go to bed. I click away with reckless abandon on a daily basis. You see, clicking is my “I Dream of Jeannie” blink and nod in the cyber world. If I want to find any state parents of multiples organization, I begin with typing in www.nomotc.org –click—Member Club Links under Find a Local Club on the right hand side of the website – click – the Clubs and State Organizations page comes up –click—on any one of the states to see the member clubs with web pages and at the very bottom of the list is the state organization website, provided that they have a state organization and a website. All this with just a few clicks!

If we find ourselves in need of a getaway to another state’s convention because we can’t wait for our own state’s convention or the national convention then click– click and in a flash I am in Indiana asking about their upcoming state convention in June. It’s just that fast and how lucky are we?

Speaking of state conventions, have you updated your state’s information either under the State Organization Links or on the State Organization Directory in the Members Only section of the website? It is important to keep that information current so we can stay connected and potential members can find you easily!

Yes, today we are all clickers, and thank goodness for the time saver it is and for keeping us all connected in such a fast way. I can only imagine the parents of the next few generations, what will the Internet evolve into then? What if clicking as we know it, is a distance memory. As I begin to click to find the registration for this year’s national convention in Boston, I just wonder…

If you, too, will be attending the national convention like I will be…it’s my home state organization, don’t you know!…then please make the time to join us at the State Organization Share Shop on Wednesday, July 23 from 9 am to 11 am. The State Share Shop is open to all state officers and others interested in state organizations to exchange ideas and best practices. This is a great networking opportunity! The Membership Department looks forward to seeing you there!

INVOLVING AND RETAINING MOTHERS OF OLDER MULTIPLES

By: Kim Ozark 
Research Chairman

Retaining mothers of older multiples has been a problem since the inception of mothers of multiples (MOM) clubs. Local clubs were formed due to the need for information and support for mothers when multiples were added to the family. Most members joined their club when they were pregnant or shortly after the birth of their multiples. Most members attend meetings/events of their local club until their multiples reach school age. The vast majority then drops out, choosing not to renew their membership.
NOMOTC’s survey “Involving and Retaining Mothers of Older Multiples” was developed to explore ideas for keeping these members.
The survey was filled out by mothers with multiples over age five. A total of 310 surveys were received. The age of respondents ranged from 25 to 55+ years with 37 percent from 25 to 40 years and 63 percent from 41 to 55+ years. The ages of the multiples ranged from two to 55 years.
The vast majority of mothers joined their local club when their multiples were zero to two years (94 percent).
The longest length of membership in a local club was 50+ years. The majority length was six to ten years (38 percent). Interestingly, 18 percent have been members over 20 years. To have so many over 20 years gives credence to the information that was gathered. And it proves that local clubs can retain members with substantial longevity.
The reasons members attend less than seven club meetings, were that their children were older, the programs were not of interest to them, feeling uncomfortable, and no connection with members,
The respondents offered a large number of ideas for keeping mothers with older multiples.
Make sure the club focus is not just on MOMs with young multiples.
Have meeting topics that are appropriate for all members (generic topics like woman’s health, fitness, CPR, book club, etc.).
Hold meetings where “seasoned” members come and share stories/experiences.
Reduce dues to members five plus years. Offer free memberships for fifteen plus years to entice continued membership.
Acknowledge the contributions of members with older multiples (Awards Night). This gives kudos to and increases awareness of these members.
Find out what the needs are of moms with older multiples in your club.
Have an “experienced” MOM coordinator who has breakout sessions when the meeting is geared to younger MOMs.
Try to have fewer programs and more socializing time.
Introduce long time members at meetings.
Keep meetings fun.
Have activities that encourage interaction like Bunco.
Try starting a breakfast or lunch group that meets when kids are in school.
Don’t penalize members for not attending meetings/events.
Have a “club within a club” geared toward seasoned MOMs.
Offer activities for school aged children.
Encourage members with older multiples to attend state and national conventions. It will keep them involved at the local, state and national level.
Offer scholarships for multiples graduating from HS. Members may continue membership for possible scholarship award.
Include meeting topics about school age issues. Offer these members something they cannot get elsewhere so that they will make time in their schedules to attend.
Allow grandchildren to club parties.
Offer a column in your newsletter from seasoned MOM’s perspective.
Encourage members to stay. Treat them with respect; welcome them, keep them active and involved, and never make them feel left out. Ask their advice but also ask them for ideas. Give them reasons to participate – MOM panels, sharing experiences, chairmanships, etc. Make them feel their contributions and talents are wanted and valued.

The reasons MOMs stay members in local clubs is because of friendships they have developed; for the information/support they cannot find in other places; for “Me Time” away from the family; and the desire to help newer members because they are grateful for the assistance they received when they first joined.

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