Author: Kathy Johnson (Page 3 of 5)

Multiples of America bylaw amendments

Do you or your club want to propose an amendment to the bylaws and/or standing rules of Multiples of America?  If so, please submit all proposed amendments to the Parliamentarian by the December 15, 2018 deadline.  Please send any questions/concerns or draft amendments to:  Thank you.

Multiples of America has teamed up with FertilityIQ

Dear Members of Multiples of America,

Have you sought  fertility treatment? If so – we need your help!

We are teaming up with FertilityIQ to encourage  fertility patients to review their fertility doctor.  FertilityIQ will make a donation to Multiples of America for every  review we  provide.

FertilityIQ was started a few years ago by a husband and wife team to ensure other patients get reliable & helpful information on doctors, clinics, costs and more. Everything on the site is free and there are no advertisers on this site. You are encouraged to visit Fertility IQ’s website to learn more about this company before you send in your personal review.

You can leave an anonymous review of your fertility doctor(s) by starting here – make sure to provide lots detail because thousands patients will rely on what you have to say.

A few last notes:

  1. In the review, when asked who referred you to review, type “Multiples”. This will come at the end of your survey assessment. This is how fertility IQ will keep track of the organizations participants.
  1. If you’ve been treated at multiple clinics, you can provide multiple reviews (we get credit for each!)
  1. Feel free to share the link with others you may know that have sought fertility treatments.  Multiples of America, will receive credit for every  review that cites us It doesn’t matter if they are a member of a member club.
  1. The donation window will expire on November 27, 2018, so please take a few minutes to leave your assessment before the closing date!

Please Note: By clicking the link and submitting your assessment to FertilityIQ, you must agree to the terms of use and privacy policy provided by FertilityIQ. Any information provided is done so with the explicit knowledge that it is done willingingly to complete the assessment, with the full knowledge and consent of the user. Multiples of America is not responsible for the content of the FertilityIQ assessment. Multiples of America will not share your contact information with any third parties without express consent.


Kim England, President
(also known as the National Organization of Mothers of Twins Clubs)


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Research with multiples contributes to our knowledge of issues relevant specifically to multiples but also has the potential to contribute transformative insights to our understanding of health and disease for the whole population. ICOMBO is gathering information to present to researchers about what multiples (and their families) would like if they are involved in research. The first step is a survey to find out more detailed information about how people feel about being involved in research. It is important that we can get the message to researchers about how we want multiples to be treated, so your input will be very valuable. I know some of the questions may seem a bit odd to those not familiar with what some research studies involve. However, these will help us guide researchers on what we may accept when asked to participate and then they can design their studies accordingly. 

This survey is for both multiples themselves (if they are old enough to make decisions about their involvement in research) and parents of younger multiples.

If possible please complete the survey in English using the following link:

Alternatively the survey is available in a number of other language options if you would prefer:

Arabic –

French –

German –

Japanese –

Spanish –

Note all your responses are anonymous.

Please share far and wide so we can get as many responses as possible. If you have any questions about this survey please contact Carolyn ( Thank you.

ICOMBO stands for the International Council of Multiple Birth Organisations. We are a voluntary organisation whose aim is to raise awareness of the unique needs of multiple-birth infants, children, adults and their families promoting their health, education and welfare.

Monochorionic Twin Pregnancy Survey









Evergreen Fetal Therapy and Center for Fetal Medicine and Women’s Ultrasound/UCLA are conducting an anonymous survey on women who have been pregnant with monochorionic twins. Monochorionic twins are identical twins and higher order multiples who shared a placenta. Please help us learn more about monochorionic twins and multiples and how they are screened and treated for possible complications (Twin-Twin Transfusion Syndrome (TTTS), Twin Anemia Polycythemia Sequence (TAPS) and other pregnancy complications). You will also help us learn how they are being managed across the United States and the world.


Click on link and put into url to begin survey:


Thank you for participating and for improving awareness of and treatment for monochorionic pregnancies!

Marge Ainsworth 1921-2017

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